Strategy & Structure

The Manchester Rare Conditions Centre is a virtual platform with the vision to improve the lives of people and  families living with rare conditions.

Our mission is to improve the lives of people and families living with rare conditions.

Our vision is to create an exemplar network of healthcare services in Manchester for people and families living with rare conditions, to support development of infrastructure and capacity in Manchester that can enable significant research and innovation breakthroughs in the field, to contribute towards development of workforce fit for delivering the services and breakthroughs, to facilitate engagement between relevant stakeholders in the field, to catalyse a compassionate empowered community for people and families living with rare conditions and share models of care with other care givers nationally and internationally.